The short article shows how in current research practices the law fails in o facilitating medical research and makes a plea for a fresh view and the development of legal/ethical standards that re-align the interests of the implied stakeholders better than the current antithesis of privacy versus research.The current legal approach puts considerable pressure on individual consent. A better representation of the interests of the individual patients is direly needed. After all, an individual’s consent is hardly the lodestar of medical research and of medicine altogether.
From Bottleneck to Enabler: A New Approach to Regulating Data-Driven Medical Research
Laura Evangelista
Writing – Original Draft Preparation
;Anastasia M. Mele
Writing – Original Draft Preparation
;Elisa Spiller
Writing – Original Draft Preparation
;
2023
Abstract
The short article shows how in current research practices the law fails in o facilitating medical research and makes a plea for a fresh view and the development of legal/ethical standards that re-align the interests of the implied stakeholders better than the current antithesis of privacy versus research.The current legal approach puts considerable pressure on individual consent. A better representation of the interests of the individual patients is direly needed. After all, an individual’s consent is hardly the lodestar of medical research and of medicine altogether.File in questo prodotto:
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Bottleneck Enabler Pin.pdf
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