Storage of human biological samples and personal data associated with them are organised in Biobanks. In spite of expectation given by biobanks in medicine, their management involved some ethical questions such as, for example, the need for policies to regulate economic interests, potential commercial uses of data (including patents), private sector financing, ownership of samples and benefit sharing. In the context of contributing to the general public interest, we can consider the act of giving biological material to biobanks as a donation, in which the donation constitutes part of a generalised form of reciprocity in which the act of donation contributes to society's common good. Starting from this perspective we move into a different situation represented by the biobanking of umbilical cord blood for personal use. We used the example of the private biobanking of umbilical cords to demonstrate the restrictive utility of the collection and preservation of cord blood for personal use in private biobanks, in the context of society's common good. In summary a system based on solidarity seems to be able to guarantee necessary levels of supply for the donation of biological material to biobanks.

Biobanks between Common Good and Private Interest: The Example of Umbilical Cord Blood Private Biobanks.

ONISTO, MAURIZIO;CAENAZZO, LUCIANA
2011

Abstract

Storage of human biological samples and personal data associated with them are organised in Biobanks. In spite of expectation given by biobanks in medicine, their management involved some ethical questions such as, for example, the need for policies to regulate economic interests, potential commercial uses of data (including patents), private sector financing, ownership of samples and benefit sharing. In the context of contributing to the general public interest, we can consider the act of giving biological material to biobanks as a donation, in which the donation constitutes part of a generalised form of reciprocity in which the act of donation contributes to society's common good. Starting from this perspective we move into a different situation represented by the biobanking of umbilical cord blood for personal use. We used the example of the private biobanking of umbilical cords to demonstrate the restrictive utility of the collection and preservation of cord blood for personal use in private biobanks, in the context of society's common good. In summary a system based on solidarity seems to be able to guarantee necessary levels of supply for the donation of biological material to biobanks.
2011
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/11577/2484041
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