The collection of papers in this book is the fruits of one of the twelve workshops organized in the framework of the Tiss.Eu project founded by the European Commission. This project, which has likely been the most ambitious and comprehensive one in the field of human tissue policy research, started in 2008 and completed in 2011. During the three years of collaboration between the researchers of nine universities and research centers, different aspects of tissue collection, storage, and transfer were systematically studied: the usage of tissues and cells for non-clinical research purposes, the privacy and property rights emerging in relation to these uses, the issues of data protection, anonymisation and pseudonymisation, as well as the regulation of various types of biobanks.
BIOBANKS in the Mediterranean Area
CAENAZZO, LUCIANA;
2011
Abstract
The collection of papers in this book is the fruits of one of the twelve workshops organized in the framework of the Tiss.Eu project founded by the European Commission. This project, which has likely been the most ambitious and comprehensive one in the field of human tissue policy research, started in 2008 and completed in 2011. During the three years of collaboration between the researchers of nine universities and research centers, different aspects of tissue collection, storage, and transfer were systematically studied: the usage of tissues and cells for non-clinical research purposes, the privacy and property rights emerging in relation to these uses, the issues of data protection, anonymisation and pseudonymisation, as well as the regulation of various types of biobanks.
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